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Mass General Brigham researchers joined partners f Mass General Brigham researchers joined partners from Perkins, families, advocates, and policymakers at the Massachusetts State House for Cerebral Visual Impairment (CVI) Awareness Day to raise awareness of one of the leading causes of childhood visual impairment.

Cerebral visual impairment (CVI) is a brain-based condition that affects how the brain processes visual information. Although children with CVI may have healthy eyes, they can still struggle to recognize faces, locate objects, and interpret the visual world around them. Yet many children are not identified until years after symptoms begin.

Researchers at Mass General Brigham for Children, led by Mohamed El-Dib, MD, are working to change that. In collaboration with Lacey Smith of Perkins School for the Blind, the team developed new guidelines to help clinicians identify infants at risk for CVI while they are still in the NICU, connect families with appropriate resources, and ensure children receive support during a critical period of brain development.

Together, research, education, and advocacy are helping advance earlier identification, intervention, and support for children with CVI and their families. Learn more about their research efforts at the link in our bio. 

An additional collaborator on this work was Gena Heidary, MD, of Boston Children's Hospital.

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